Yesterday 8th October

I woke up at 6.45am. I woke the children. I checked on my mum and she was awake. I put her light on, opened her blinds, turned on her televison and gave her a glass of water.

I checked on my mum, she had fell back asleep.

The children left at 8am. I checked on my mum, she was still asleep.

I began my tummy cruncher DVD and completed the full 50 minutes whoop! whoop! back on track.

The carer arrived at 9am we showered my mum and washed her hair, we put her clothes on and then walked her through to the kitchen, we sat my mum in her wheelchair. The carer gave my mum her breakfast, blow dried her hair and brushed her teeth whilst I got washed and changed.

I drove my mum to the day care centre and then I drove to the hosptial, I had an appointment at 12 noon. I had taken unwell around the end of May 2015, my stomach was in agony and I ended up in hospital. I had a high level of chronogranin A in my blood which is normally linked to a Neuro-endocrine tumor, what a frightening time. I had lots of tests done such as an MIBG scan (nuclear scan) MRI scan with contrast and a CT scan with contrast. however, all that was found was that my pancreas was bulky on the lefthand side.

I saw my consultant, because I said I was feeling great at the moment, outwith, the stitch I keep getting on the right hand side of my stomach, he decided to keep my file open. He told me to call and make an appointment in 3 – 4 months if the stitch continued as this can indicate gallstones. He explained that gallstones do not always show up in scans. The wait continues – which is fine because I feel good at the moment.

I drove to the day care centre and arrived early, I sat with my mum for a while and then I decided to take my mum for a walk outside. Pushing my mums wheelchair up the hill next to the day care centre was exhausting, I was puffed out, my mum was enjoying it though, she was chattering and laughing. I walked her around for a while and then I started the journey back to the day care centre – downhill – fantastic….. You would laugh if you saw the hill and you would think what is she on about, it looks like a slight slope, however, pushing my mum in a wheelchair makes the slight slope feel like a mountain…. I wish that they would hurry up with the referral for the powered motor for the wheelchair, it would make life so much easier. Win the lottery….., win the lottery….., I should start playing it first, I never buy lottery tickets hmmmmm!

The lady from the day care centre helps me put my mum in the car, my mum is squint and down in the seat and we cannot manage to move her up. I drive back to my house and wait for the carer to arrive to help me get my mum out of the car – I am early.

I decided that I would need to try and move my mum as she looked very uncomfortable. I moved her feet out of the footwell, what a palava, you really need to twist and pull her feet to get them round – poor mum. I sat her upright and held her hands and hoped that the carer would arrive early. We stayed in this position for about 10 minutes my arm was getting sore holding my mum upright and my mum kept trying to lie down putting a lot of pressure on my arm – I wish I had not arrived home so early.

Feeling angry again I wish someone would make contact with me regarding the mobility car and or the transport costs, it so unfair to my mum. To think that the local authority are quibbling over £56.90 transport costs, when it is costing them more to arrange for the carers to help me get my mum out the car – DIABOLICAL!!!!!!

Grrrrrrr!!!!! let older people live in the community but do not provide the equiptment and support that they need to maintain a normal and full life – makes me feel like a wild woman…….. If my mum was in a nursing home it would cost over £700.00 a week so why cannot they provide transport for her to a day care centre Grrrrr!!!!!

The carer arrives and we get my mum out of the car and wheel her into the house. The carer helps me change my mums pad and we sit my mum in the livingroom.

My children arrived home – what a noise – they are getting excited as it is nearly holiday time.

I prepared dinner and the we all ate our dinner. We sat and watched television for a while and then we walked my mum through to her room, we changed my mums pad and then I put her to bed.

My bed time too!!!!!!